(image from the children’s primary hospital blog) This article was written by Molly Clark with the Social Security Administration. She emailed me and asked if I would share some info on SSA Disability Benefits for parents who have kids with Congenital Heart Defects. Stevie does not receive these benefits, but I feel like if there’s any…
With all the therapy that Stevie is getting, sometimes it’s hard not to get frustrated and impatient when progress doesn’t happen as quickly as you think it should. A couple months ago, I wrote a post about how tough it is to see his low scores over and over. But the thing you I have to…
Today started out well enough. And it actually ended quite well too. But that whole bit in the middle was a huge load of crap. I picked up Stevie a little early from school. He had an eye appointment, and I knew if he didn’t at least get a short nap, that appointment just wouldn’t…
Among all the evaluations Stevie got last month, there was a sensory eval. In this one they look at all sorts of behavioral things, mainly how he reacts when given tasks, textures, movement, etc. The kid passed his visual test with flying colors. Go figure. The rest of the evaluation was mediocre, needs improvement in…
When I talk about Stevie’s sleep habits, I always knock on wood. It seems that the very minute I tell anyone that he’s been sleeping through the night, he no longer does! And yesterday when I mentioned it during his OT evaluation, I must have been knocking on fake wood or something. Because sure enough,…
Every 6 months, Stevie has to be evaluated. These evals determine whether or not he will continue receiving Regional Center Services. If you don’t already know, he gets all 7 weekly therapy sessions and preschool through the Regional Center. They are part of early intervention programs. A fantastic resource, if you ask me! But with…
My son has never liked stuffed animals or anything with a really soft texture like that. Sensory overload!! You can imagine a mother’s disappointment as she, while pregnant, decided to stock up on all the adorable, soft, furry, fuzzy toys and blankets in hopes that one of them would become his favorite. I thought for…
Once in awhile, Stevie will catch a glimpse of that cute kid in the mirror and stop whining at me for a minute to say hi. This particular time, I couldn’t get over how long his legs have gotten! That happened overnight, and I’m certain he could step over the moon if he tried. [youtube]BIjOpCEMfR8[/youtube]
This is not Stevie’s first time eating spaghetti. Not being much of a cook {ahem, what?!} it gets made often in our house. And that’s an understatement. But this is the first time he’s wanted to try eating it by himself. I got such a kick out of watching. There was not much eating going…
Busy week over here in Burbank. On top of the usual crazy schedule, we had to squeeze in a first dentist visit and a follow up with the orthopedist. Just those 2 extra things made me feel so tired! We got some good news and some not-that-great-but-not-terrible news. Good news first, right? Stevie will not…