This week we had an unexpected surprise for our family. It’s not nearly as dramatic as it sounds, but it feels like the start of something good. You may or may not know that Stevie has an intellectual disability. He’s been in special ed since he started pre-K and has always been severely delayed in…
Sewing has brought me a great deal of comfort these past couple weeks. I have been a big ol’ ball of nerves leading up to Stevie’s heart procedure tomorrow. And sewing has given me something methodical and time consuming to focus on so that my brain can steer clear of the dark and scary thoughts…
Every time I sit down to try and write this post, I am short on words. I think I feel a little overwhelmed as usual, so I just don’t know where to begin. And today of all days, I am riddled with anxiety. But I need to avoid online shopping. So I’m going to do…
How many times can I play this game of catching up on the blog? As of late, I feel little urges to get back to writing. But it seems that every time I sit down and try to put my thoughts into words or my fingers to the familiar click-clack of the keyboard, my brain…
You know if I’m dusting off the blog, it’s time for a pretty major update. But it’s major in a way that’s not really major at all. It doesn’t change anything in our day to day lives, but we have been seeking answers to Stevie’s health mysteries for quite some time. In that sense, an…
I’m someone who has always enjoyed going to the movies, because… IDK American? The sights, the smells, the sounds, I love it all. Even when the movie isn’t particularly good, and even as the ticket prices become more and more outrageous, I always seem to enjoy the overall experience. And of course, the popcorn. I…
Well it’s been a hot minute since I’ve updated you all on Stevie’s life — and all the medical stuff that goes along with that. This post is about 8 months in the making, and details are starting to get muddled for me. But I’m fresh off the latest doctor appointment with his neurologist, so…
This morning, I was venting to Paul about how difficult Stevie has been the last little while. He scoffed and said “You mean the last 6 and 1/2 years??” And of course we do have to have a sense of humor about it. It is laughable to try and pinpoint when difficult phases begin and…
Over the last year, words have not come easily for me when I think about Stevie. I sit with my hands on the keyboard, ready to unleash some truth on y’all and instead, I run into a full mental block. I want to tell you about his successes. And I want to tell you about…
Yesterday, we had a big time doctor’s appointment for Stevie at Boone Fetter Clinic. A few of you already know that this was long awaited — not only for the last several years of talking about it, but once we finally made the decision to go forward, we had to book 6 months out. Popular…