OCTOBER. October 2014. Let’s all think about what we were doing back in October… Well, I can tell you that’s when we started the process to get Stevie supplemental MediCal insurance! Never mind the fact that nobody told us he could have received it the last 4 years, since his first heart surgery. That’s the kind of stuff that…
We have struggled with Stevie’s sleep patterns since day one. I mean, I know babies don’t sleep, but if you followed my blog all these years, you’ll know Stevie has been a rotten sleeper well past the newborn stage. An exhausting combination of health problems, restlessness and EVERY failed sleep-training method known to man, and…
Blah. To put things very plainly: I am struggling. Big surprise, I know. Like when is this chick ever not struggling?! I’m with you! Get it together already lady! Eh, this past week with Stevie… do I even say? It sucked. To the point where I couldn’t find the funny in it anymore. Tantrum in…
Since it is CHD Awareness week, I thought I would write a little bit about some of my more difficult experiences as a heart mom and some things I would do differently if given the opportunity. I know, they say hindsight is 20/20. And I did the best I could at the time. I try…
We are doing so much better today. I mean, yes I’m kind of exhausted. It is not easy keeping a busy body like Stevie at home to recover. I feel my battery completely drained by the end of the day. Which I guess isn’t that different from most days. But I actually got a good…
We are home. Fast, right?! We woke up at 4:15 am and made it home by 10:30 am. Sounds easy enough! Oh but it’s not. There’s so much more. What you didn’t see was all the tears and prayers these past weeks leading up to this. All the doubts going back and forth between my…
Well, true to form, I somehow make myself really busy and overwhelmed right before we have a big thing coming up. Stevie’s been approved for his eyelid surgery (1 of 2) scheduled for June 17th. A bunch of doctor appointments and pre-ops go along with that. And instead of trying to stay calm and keep…
After I published my mama bear moment, I got a lot of supportive comments and congratulations for standing up for Stevie. It was so appreciated. You guys are the best. I also got a handful of emails from people asking how to avoid a situation like that all together. How do we teach our child…
Let’s first take a moment to define a mama bear. According to Urban Dictionary, a very reliable source, it is “A mom who can be cuddly and lovable but also has a ferocious side when it’s necessary to protect her cubs.” I’m not sure I love the term because it kind of puts a heroic spin…
(image from the children’s primary hospital blog) This article was written by Molly Clark with the Social Security Administration. She emailed me and asked if I would share some info on SSA Disability Benefits for parents who have kids with Congenital Heart Defects. Stevie does not receive these benefits, but I feel like if there’s any…