Every 6 months, Stevie has to be evaluated. These evals determine whether or not he will continue receiving Regional Center Services. If you don’t already know, he gets all 7 weekly therapy sessions and preschool through the Regional Center. They are part of early intervention programs. A fantastic resource, if you ask me! But with…
It is not often I do 2 blog posts in one day, but I’m pretty amped about this one. My apologies in advance for my “excited voice” (again). But this moment was so worth it! I know it seems like a simple enough task. Stevie needs to pull two items apart. What you don’t know…
Stevie gets vision therapy through the Junior Blind of America. Thus, we get invited to all their cool little events! Well, I shouldn’t say little. Quite a turn out and quite a lot to do. The day started out well enough. We ate, played in the sensory room, visited with some familiar faces, tried some…
One day last week, I felt brave. I felt really brave. Brave enough to try taking Stevie to the beach. All by myself. I completely expected it to be a huge failure. In my head, it went a little something like this: We drive for 2 hours, haul all our stuff a mile to get…
Stevie survived yet another surgery! This one was “easy”… Or as easy as they come, I suppose. A short, outpatient procedure. We were in the hospital at 5:30am and back home by 11:30am. It still felt like the longest day in history though. They corrected his Esotropia, although I don’t know how they did it, besides what…
So… Stevie was supposed to have eye surgery in January. But as you may recall, that got postponed at the last minute. We have been waiting patiently for his rescheduled operation this coming Monday. This past week was spent at pre-op appointments and on the phone getting things squared away. Friday morning, he woke up with green…
After a handful of pre-op appointments and lots of phone calls and scheduling and faxes to and from different doctors and specialists to prepare for surgery on Monday morning, I just got a phone call telling me his eye surgery needs to be postponed. The anesthesiologist reviewed his chart and doesn’t feel comfortable working on…
Well things move quickly in the ranks of Children’s Hospital. We really do have the best doctors! We left our cardiologist appointment at 10am and by 2pm, I was on my way to CHLA since they squeezed us in for an ultrasound on the aneurysm. The ultrasound took some time with this little wiggle worm,…
Today we had our consultation with the amazing and brilliant and wonderful Dr. Wells, who performed the baby’s first heart surgery, and basically saved his life – not only from the heart condition, but also during the complications in surgery. He acted quickly and seeing him today reminded me how grateful I am for him.…