If that glowing smile doesn’t say it all… This kid was in heaven. We are not ones to shy away from watching vehicles do their thing. Whether that’s sitting near the valet at a restaurant to watch them park, or pulling over to the side of the road to wait for a train to whiz…
Well it’s been a hot minute since I’ve updated you all on Stevie’s life — and all the medical stuff that goes along with that. This post is about 8 months in the making, and details are starting to get muddled for me. But I’m fresh off the latest doctor appointment with his neurologist, so…
This morning, I was venting to Paul about how difficult Stevie has been the last little while. He scoffed and said “You mean the last 6 and 1/2 years??” And of course we do have to have a sense of humor about it. It is laughable to try and pinpoint when difficult phases begin and…
Over the last year, words have not come easily for me when I think about Stevie. I sit with my hands on the keyboard, ready to unleash some truth on y’all and instead, I run into a full mental block. I want to tell you about his successes. And I want to tell you about…
I got on a roll editing this week! Go me! Often times I use my big camera with big plans and big intentions to put together the cutest videos, but it’s a really easy thing to put aside for later. And later. And later. So they rarely never happen. And while one of my summer…
Yesterday, we had a big time doctor’s appointment for Stevie at Boone Fetter Clinic. A few of you already know that this was long awaited — not only for the last several years of talking about it, but once we finally made the decision to go forward, we had to book 6 months out. Popular…
As I started writing this blog post, I wanted to dedicate it to the new parents out there. Because holy crap if you’re a new parent. You are surely going through some big changes. You are definitely tired. You are probably hormonal. You are feeling accomplished and hopeful and well-adjusted one day — and like…
Halloween. Come and gone. And I hate to admit, I was dreading it. The weekend leading up to Halloween, had me feeling all the things. (Mostly anxiety.) I scrolled through my social media and saw everyone having the BEST HALLOWEEN WEEKEND EVERRRR for like 4 days straight. And here I was, barely able process how…
As most of you know, Stevie had another eye surgery yesterday. This was his 9th time under anesthesia. The fourth eye surgery. Three of those being on his eyelids. Does he have 3 eyelids?? No, the first one just failed, so we had to do it again. I have many, many grumpy faces and new…
It seems to me that all moms have a very emotional response before their babies start Kindergarten. I am witnessing it first hand, all around me. It’s the start of a new chapter. They will be with all those big kids in the elementary school! These little beings, who have been so dependent on us…