If you read my last post, you could probably guess that I was dreading Stevie’s latest appointment with the cardiothoracic (heart) surgeon. This would be our first time seeing him in nearly 8 years, which is kind of amazing when you think about the rough start we had. But of course it was to discuss…
Oh dear Lord, what a day! Frankly, I’m glad it’s over and Stevie is heading to bed. I was so anxious leading up to this procedure, but as promised, game faces were ON this morning. We were all feeling ready to kick some ass. Well, some of us more than others. Once we got into…
As most of you know, Stevie had another eye surgery yesterday. This was his 9th time under anesthesia. The fourth eye surgery. Three of those being on his eyelids. Does he have 3 eyelids?? No, the first one just failed, so we had to do it again. I have many, many grumpy faces and new…
What the hell just happened?! The ending result is a best case scenario, but getting here felt like we were thrown in a fire, taken out, put into a tumble dryer, shaken up real good, and then spit out on the floor like an old piece of gum. You already know the part where Stevie…
All week, I was totally fine. Not worried. Keeping busy. Feeling strong. ALL WEEK LONG. But there is something about going to the hospital the morning of surgery. The familiar drive before the sun is up. The familiar check-in procedure. Familiar faces. Familiar toys. Familiar pj’s. Familiar waiting room. We’ve been there so many times…
Oh, hello January 7th. It’s you again. Every year you show up and gently remind me of something. You like to remind me of something that I nearly lost. You like to remind me to look around at what I have. Usually I wake up on January 7th feeling a bit melancholy. But this year…
We are doing so much better today. I mean, yes I’m kind of exhausted. It is not easy keeping a busy body like Stevie at home to recover. I feel my battery completely drained by the end of the day. Which I guess isn’t that different from most days. But I actually got a good…
We are home. Fast, right?! We woke up at 4:15 am and made it home by 10:30 am. Sounds easy enough! Oh but it’s not. There’s so much more. What you didn’t see was all the tears and prayers these past weeks leading up to this. All the doubts going back and forth between my…
Well, true to form, I somehow make myself really busy and overwhelmed right before we have a big thing coming up. Stevie’s been approved for his eyelid surgery (1 of 2) scheduled for June 17th. A bunch of doctor appointments and pre-ops go along with that. And instead of trying to stay calm and keep…
Last night I was laying in bed, thinking about why it had been such a difficult day for Stevie. Was it because he started his new school? Was he mad at us for leaving him in an unknown place? Was he tired? Was he frustrated about something else that he couldn’t tell us about? Are…