It hit me a few days ago that it’s October. I know. A little late? But October is pretty significant in a couple ways, including another heartiversary. When he was 10 months old, back in 2011, that’s when Stevie had his 2nd open heart surgery to patch the hole in his heart and place a…
February is full of hearts. Pink hearts, red hearts, candy hearts, chocolate hearts. But there’s another type of heart that plays an important part. Confirmed: I’ve been reading way too much Dr. Seuss. This post is not to show off my rhyming skills, but to remind you that February is Heart Health Awareness Month! CHD…
Stevie survived yet another surgery! This one was “easy”… Or as easy as they come, I suppose. A short, outpatient procedure. We were in the hospital at 5:30am and back home by 11:30am. It still felt like the longest day in history though. They corrected his Esotropia, although I don’t know how they did it, besides what…
We are in the middle of a crazy week. I think it feels extra crazy because Paul has been working 10 days in row (just 2 more to go and then some time off!!!) But he’s tired. I’m tired. Stevie is sick of me. Every day this week, I’ve been running the tyke around to…
So… Stevie was supposed to have eye surgery in January. But as you may recall, that got postponed at the last minute. We have been waiting patiently for his rescheduled operation this coming Monday. This past week was spent at pre-op appointments and on the phone getting things squared away. Friday morning, he woke up with green…
After a handful of pre-op appointments and lots of phone calls and scheduling and faxes to and from different doctors and specialists to prepare for surgery on Monday morning, I just got a phone call telling me his eye surgery needs to be postponed. The anesthesiologist reviewed his chart and doesn’t feel comfortable working on…
One year ago today, we were in a very different place. Children’s Hospital. My husband and I were on no sleep. And just waiting. Stephen was undergoing the 1st of his open heart surgeries. The day before, we had found out that he had a congenital heart defect and the doctors whisked him from my arms…
Stephen had his second open heart surgery early this morning. It was a success, according to our amazing surgeon. We are so glad that he is safe and has a healthy working heart. This morning came much too soon for my liking. We were out of bed at 4:30am and headed to the hospital around…
Well things move quickly in the ranks of Children’s Hospital. We really do have the best doctors! We left our cardiologist appointment at 10am and by 2pm, I was on my way to CHLA since they squeezed us in for an ultrasound on the aneurysm. The ultrasound took some time with this little wiggle worm,…
Today we had our consultation with the amazing and brilliant and wonderful Dr. Wells, who performed the baby’s first heart surgery, and basically saved his life – not only from the heart condition, but also during the complications in surgery. He acted quickly and seeing him today reminded me how grateful I am for him.…