Perhaps you’ve read about my friend Heather before.  She is one tough cookie – battling brain cancer (+some) and raising awareness all over social media for rare diseases like  hers: Cowden Syndrome and Lhermitte-duclos Disease.  Here is her latest attempt to get the word out.  Shirts purchased will also help her pay medical bills.

Hi everyone! I would like to thank Jaana for this opportunity to share some things with you.  I have known Jaana for several years and we have a mutual love of all things Disneyland.  But that’s besides the point.  🙂 

A few years ago I was diagnosed with a rare brain tumor and that led to another diagnosis of a rare disease called Cowden Syndrome.  I write on my blog (which is the “hopeforheather“) and tweet to do what I can to raise awareness for both syndromes since they are both so rare. 

A  few days ago I found a link to create shirts to help me in my advocacy efforts.  It’s called teespring.com and it’s a crowdfunding site.  “Crowdfunded custom apparel”.  I made the shirts to help me in my awareness efforts so if you purchase a shirt you help me in my goal PLUS you also help me too!  I have 17 days to complete the campaign otherwise the shirts will not be printed.

I hope you will consider purchasing a shirt.  Thank you!

CLICK HERE to purchase a custom tee shirt and help raise awareness!!!