As long as everything keeps going the way it is, looks like we’ll be going home before the end of the week! I am nervous, but mostly just can’t wait. I am so ready to be out of the hospital.
Since we moved up to the 6th Floor, I have been spending most of my time here. I go home to shower and unwind for a couple hours, but other than I’m right here by the baby’s bed. The huz spends most of the day here too, but I insist he goes home at night since there is no sense in both of us being so tired. Plus he has to go back to work this week, so he needs the rest more than me. I can always take naps during the day. The busy nights are good practice for taking Stephen back home – except that I will get to sleep in my own bed and not this crazy fold-out chair! But it’s amazing where you can fall asleep when you’re tired enough.
Baby continues to eat more and more every day so it’s really exciting to see that. The nurses are also teaching us how to administer his medications (looks like he’ll be on 3 different things at home). I think we would be going home a lot sooner if he wasn’t on cortisone, but he has to be weened off that and later this week is the soonest they can get him off the stuff. It doesn’t hurt that here we also have access to morphine, which helps him be more comfortable. The best I can do at home is baby Tylenol – just doesn’t have the same affect. So hopefully he will be mostly pain free when we head home. The incision is healing nicely so I think he will be ok.
So it’s all good news right now! We are trying to wrap our heads around how we are going to do this all again within the next year, but I think now that we kind of know what to expect it will be a little easier. And as long as the 2nd surgery goes well, the hospital stay shouldn’t be very long at all. After the 2nd surgery he shouldn’t need another one for about 8-10 years depending how much he grows and whether the new pieces of his heart are wearing out or not.
We are glad our little man is so tough. Gives us faith that he will pull through any other procedures with no problems.
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Hi, I started reading your blog right before you gave birth. I’m so sorry for the things you and your family have been going through — it has to be tough. I’m glad things are starting to look up, I’ll keep you and your family in my prayers.
take care…angel
*sigh* I am so relieved. I’ve been thinking about you all.
So happy you’ll be going home soon as a family.
You are amazing – and so is Stephen! Hugs and love your way!
Yay! So happy to hear Steven is doing so well. I’m going to be doing the happy dance when you all get to go home.
I like hearing what it’s like up on the 6th floor. Good to hear they let you sleep there.
Mason was extubated today and is doing great. I’m hopefull we will be up on the six floor soon.
Fingers crossed!
Did you get FISH test back yet? Ours came back negative but now they are sending out for a more sensitive test. So we wait another 10 days for results. Ugh!