This little man just wants to give us a run for our money. *SIGH*
The last two days have been fairly uneventful, as he was just sedated and letting his little body recover from the traumatic surgery. But Stevie’s blood pressure was dropping every couple hours throughout the day. They kept bringing it back up with medication, and also put him on Nitric Oxide to open up his blood vessels, making sure his oxygen levels were good. They got it under control sometime in the middle of the night and he was weened off the meds. So we were pleased with all of that and waited anxiously for this afternoon when they could finally stitch up his chest.
His chest was left open for a couple of reasons – to allow easy access because of the earlier complications in the operating room, and to let the swelling go down in his puffy body. Since its one of the first baby steps to getting him home, we were so happy when they finally sewed him up this afternoon!
However, shortly after they closed him, his blood pressure and heart rate both dropped, scaring the crap out of everyone. They quickly got him stabilized, but they still have to figure out why it happened. The best guess right now is probably an infection, so they are sending out some cultures for testing and starting him on antibiotics. Hopefully its something that can be easily treated, and won’t cause any further complications.
The good news is that his oxygen levels are now perfect. So the heart is doing what its supposed to since it got it’s temporary fix. Thank goodness!
Hoping for more good news as the days progress. The next step will be taking out his breathing tube and that will probably be a couple days from now. Sometime after that he will be moved to the 6th Floor to finish his recovery and practice eating. When he is fully stable and he can eat and breathe at the same time, then we will look at getting to go home! Of course I’m anxious as can be to get him to that point and trying so hard to be patient. Just can’t wait to hold my little boy again and see his sweet personality and funny faces come back.
He is so sweet and so darling! I have been thinking about you and your family a lot since I heard from Krista. My prayers are also with you that your little dude can continue on to recovery. He is l lucky little man to have such an awesome mom! (and dad too)
What a fighter that little man is! I can’t believe this rollercoaster you have been on!!! He’s in my prayers. I can’t even imagine how helpless you feel watching him lay there all hooked up to everything. Glad to hear his heart is doing what it should & now you he has to take those next steps toward recovery. Crossing my fingers & praying that you can bring him home soon & get back to just lovin’ on him all the time. xoxo
Look at his coloring just from the last picture to this picture! He looks GREAT! YAY!
Jaana…you are amazing. I know I have said that, but you are! I love you and hope you know that.
now he’s just being mean :{