So Many Appointments

Last week: Stephen saw the Cardiologist. He had another ultrasound on the heart and an EKG – all is well. His oxygen levels were a little lower than usual, but well within the range they expect. We are still planning on his next surgery for June, but are yet to nail down any details. The doc said we’ll probably discuss all that at his next appointment.

This week: Stephen had his 3 month check-up at the Pediatrician. It was mostly good news. We discussed his weight gain (great), his height (still in the normal range) and his head. Oh his little head. When he was in the hospital, they did their best to keep his skull shape normalized, but there was only so much they could do seeing that he was laying down 24/7. Baby skulls are just so pliable and delicate. He still prefers to look to one side rather than the other, too. So what was once a perfectly round little head, even at birth, is now a little lopsided in the back. The doc said “I don’t want to overwhelm you with yet another appointment and another specialist, but after some other things settle down, I want to refer you to someone who will put Stephen in a helmet to fix the shape.” A helmet. I didn’t show any disappointment in her office, but as I walked to the car, I couldn’t help but let my eyes well up a bit. Just one more thing. But again, in the scheme of things its not the worst that could happen. He’ll still look cute in a helmet.
Next week: Stephen will be going to the Opthamologist to see what we can do about his lazy little eyelids. He has reached the point where he’s keeping them open all the time now, but they are still droopy. It’s called Ptosis and it basically just means the muscles in his eyelids are under developed. But I have been anxious to get that squared away as soon as possible to make sure that it doesn’t hinder his eye development in any way. Whatever needs to be done.
Getting ready for bath time!

It tires me out a little bit just writing about all he has going on. But I try to limit the appointments to one a week, just so I can keep my sanity. He keeps me on my toes, that’s for sure. In more ways than one!

3 Comments
  1. Well crap. I’m sorry to hear he has to do this but I’ve read several blogs where the babies had to have helmets. It seemed like they only wore them for a relatively short time and the helmets did everything they were supposed to.
    I’ve had many of the eyes welling up moments too. Hang in there friend. At least the our boys wont remember much of all of this.

  2. Ooohh may baby! He is the cutest little guy ever. Can’t wait to bring some Mummi love to Burbank.

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