It is not often I do 2 blog posts in one day, but I’m pretty amped about this one.  My apologies in advance for my “excited voice” (again).  But this moment was so worth it!  I know it seems like a simple enough task. Stevie needs to pull two items apart.  What you don’t know is that this simple task has taken him over 4 months to do.  He usually doesn’t even try.  He sits there crying, shaking his head and throws the toy on the floor.  Over and over again.

But not today.  Today, he pulled that damn toy apart.  Like he’s been doing it all along.  Something finally clicked.

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It nearly brings me to tears just thinking about it.  Because these simple tasks have been such a struggle for him.  It’s difficult to watch and not know how to help him.  So difficult, in fact, that we will be going to see a neurologist in April.  Gotta check on that little brain of his.  I wouldn’t be surprised if some of the wires were crossed or disconnected, only because of what he experienced during his first open heart surgery.  Going into cardiac arrest 6 times caused some oxygen loss.  Which in turn could have effected the brain.  We are obviously lucky that the damage wasn’t worse, they honestly weren’t sure.  Said we’d just have to wait and see once he woke up.  When he woke up smiling and crying and doing things that babies do, we didn’t worry too much about it.  But over time, seeing that these simple tasks have been so challenging for him, we do need to check.  Just in case.  I don’t know what it will change.  We’re already getting every therapy known to man.  But maybe we can know better what to focus on.  Or something.  I don’t know.  Hopefully the neurologist will steer us in the right direction.

But that’s to worry about another day.  Today we celebrate.  Join me won’t you?  Have a cookie or something!